Join Us in Changing the Lives of FAP Patients
To empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options.
What About Us
Empowering the FAP Community Through Advocacy and Innovation
The Life’s a Polyp Foundation is dedicated to transforming the landscape of care for individuals living with Familial Adenomatous Polyposis (FAP) through a multifaceted advocacy strategy. At the heart of our mission is the push for improved access to screening and surveillance guidelines, ensuring that standardized, rigorous protocols are utilized to identify precancerous polyps at the earliest possible stage. We act as a vital catalyst for scientific progress by lobbying for increased research funding, specifically targeting the development of new chemopreventive therapies and precision medicines that can delay or prevent the need for major surgeries.
Our Initiatives
Driving Change Through Targeted Action
Discover the core programs we’ve built to educate and support patients and families and fund the next generation of FAP research.
Featured Programs
and Initiatives
Making sense of FAP
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Increasing connection, decreasing isolation
We unite the FAP community through shared resources and storytelling to ensure no one faces this journey alone.
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Helping children understand FAP
Our specialized tools empower parents to share vital health information with children in age-appropriate ways.
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Increasing hope for the future
We’re dedicated to helping patients find clinical trials and funding FAP research for future treatments to move from delaying surgery to preventing surgery altogether.
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Our Core Pillars of Impact
Our Mission in Action
We are committed to bridging the gap between diagnosis and specialized care through strategic initiatives that empower the FAP community.
Education
Far too many patients continue to report that they’re not able to find adequate information about FAP and that too many of their providers aren’t familiar with FAP
Support
Connecting patients and their loved ones to community to reduce isolation through community resources, patient and family stories
Research
Helping patients find clinical trials and funding research to move beyond only surgical treatments available for FAP
Advocacy
Utilizing information to bring public awareness and empower patients in their care
Education
Far too many patients continue to report that they’re not able to find adequate information about FAP and that too many of their providers aren’t familiar with FAP
Support
Connecting patients and their loved ones to community to reduce isolation through community resources and patient and family stories
Research
Helping patients find clinical trials funding research to move beyond only surgical treatments available for FAP
Advocacy
Utilizing information to bring public awareness and empower patients in their care
Explore Awareness Avenues
Reading, Shopping, and Connecting
Jenny’s Children’s Book about FAP Life’s a Polyp with Zeke and Katie helps children better understand FAP, what to expect with FAP, and ways to cope with it all in a fun and age-appropriate way.
Life’s a Polyp Shop features a variety of designs showcasing FAP, rare disease, and chronic illness awareness
A Daughter’s Love Podcast features Jenny and her cousin Amy as they delve into family stories about FAP, cancer, Alzheimer’s and the love and grief that makes up caregiving. Jenny and Amy are cousins and lost their mothers 3 weeks apart, cementing them in a special connection of daughterly love.
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Connect With Our Community!
Whether you are looking for resources, have questions about our programs, or want to join our advocacy efforts, we are here to support your journey with FAP.