by benforred | Sep 26, 2023 | Cancer, Health, history, Medical Procedures, Medical Providers, Mental Health, Ostomy, Pain, Short Bowel, Surgery, Survival, Symptoms
La Mémoire Noire or The Dark Memory is a letter series written to my first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of...
by benforred | Mar 30, 2022 | Cancer, Family, Health, Medical Procedures, Symptoms
This March, Colon Cancer Awareness Month, hits harder this year than those previous. Colon cancer runs in both sides of my family and as a person with the hereditary colon cancer syndrome, Familial Adenomatous Polyposis (FAP), I particularly know the importance of...
by benforred | Sep 27, 2021 | Cancer, Health, Medical Procedures, Short Bowel, Surgery, Symptoms
When my CT scan showed gall stones in 2017, I expected I would require surgery to remove my gall bladder at some point. I didn’t have a time frame in mind for this so I didn’t quite expect it to be required by 2021 but within this time frame my many small...
by benforred | Jun 16, 2021 | Birthday, Cancer, Colon Cancer, Guest Post, Health, Ostomy
Carleton Myers turns 95 this June. He has Familial Adenomatous Polyposis and has had an ostomy since about 1948. He has seen a lot in his years and a lot of changes in the management of this rare disease and ostomies. Carleton’s mother likely had FAP as she...
by benforred | Nov 21, 2017 | Advocacy, Cancer, Colon Cancer, Family, Medical Providers, Research, Support
The University of Michigan sponsored a Hereditary Colorectal Cancer Family Day this November in Ann Arbor, Michigan. This wasn’t the first year for the family day, but it was my first year to attend. I asked my mother, who also has Familial Polyposis (FAP), to...
by benforred | Apr 8, 2015 | Cancer, Colon Cancer, Family, Guest Post, Mental Health, Symptoms
This is a guest post by Jamie Klapper Familial Adenomatous Polyposis (FAP) has been a major impact on my life from the time I was very little. My mother and grandmother both had this condition as well as me. From the time I was little, I remember my mother going to...
