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Turning age 95 with Familial Adenomatous Polyposis

Turning age 95 with Familial Adenomatous Polyposis

by benforred | Jun 16, 2021 | Birthday, Cancer, Colon Cancer, Guest Post, Health, Ostomy

Carleton Myers turns 95 this June. He has Familial Adenomatous Polyposis and has had an ostomy since about 1948. He has seen a lot in his years and a lot of changes in the management of this rare disease and ostomies. Carleton’s mother likely had FAP as she...
Exploration and Rare Disease Awareness in Philly

Exploration and Rare Disease Awareness in Philly

by benforred | Apr 2, 2019 | Colon Cancer, Research

I recently was provided the honor of serving as a member on the Familial Adenomatous Polyposis (FAP) Patient Advisory Board Meeting in Philadelphia, Pennsylvania and was able to explore this historic town while I was there. Independence Hall I arrived on a Thursday...
FAP and Lynch Syndrome Conference

FAP and Lynch Syndrome Conference

by benforred | Nov 21, 2017 | Advocacy, Cancer, Colon Cancer, Family, Medical Providers, Research, Support

The University of Michigan sponsored a Hereditary Colorectal Cancer Family Day this November in Ann Arbor, Michigan. This wasn’t the first year for the family day, but it was my first year to attend. I asked my mother, who also has Familial Polyposis (FAP), to...
Navigating the Road of FAP: Jamie’s Story

Navigating the Road of FAP: Jamie’s Story

by benforred | Apr 8, 2015 | Cancer, Colon Cancer, Family, Guest Post, Mental Health, Symptoms

This is a guest post by Jamie Klapper Familial Adenomatous Polyposis (FAP) has been a major impact on my life from the time I was very little. My mother and grandmother both had this condition as well as me. From the time I was little, I remember my mother going to...
A Mission for Early Cancer Detection: Daniel’s Story

A Mission for Early Cancer Detection: Daniel’s Story

by benforred | Mar 26, 2015 | Cancer, Colon Cancer, FAP Information, Guest Post, Health, Philosophy

This is a guest post by Daniel Shockley My name is Daniel Shockley, I reside in Hawaii and retired at age 43 from the Navy in 2003 after serving 22-years on active duty. My last three years were spent while deployed to Middle East in direct support of OPERATION...
The Touch of Cancer

The Touch of Cancer

by benforred | Mar 4, 2015 | Cancer, Colon Cancer, Family, FAP Information, Ostomy, Symptoms

Colon Cancer Awareness Month always leads me to reflecting upon my own family’s experiences with colon cancer. I’ve mentioned before that FAP has ran in my family for many generations and we have had countless numbers of members die from colon cancer....

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