by benforred | Jun 30, 2020 | FAP Information, Guest Post
Desmoid Tumors, or aggressive fibromatosis, are another rare disease that is common among those with Familial Adenomatous Polyposis (FAP). According to NORD, up to 32% of those with FAP will develop a desmoid tumor due to a mutation on the APC gene, where the FAP...
by benforred | Mar 19, 2020 | FAP Information, Procedures
If you’re within the Familial Adenomatous Polyposis (FAP) community, you likely know at least one person who also had the Whipple Procedure. Due to the high precancerous polyp growth associated with FAP, it is common for FAP patients to also develop...
by benforred | Mar 26, 2015 | Cancer, Colon Cancer, FAP Information, Guest Post, Health, Philosophy
This is a guest post by Daniel Shockley My name is Daniel Shockley, I reside in Hawaii and retired at age 43 from the Navy in 2003 after serving 22-years on active duty. My last three years were spent while deployed to Middle East in direct support of OPERATION...
by benforred | Mar 4, 2015 | Cancer, Colon Cancer, Family, FAP Information, Ostomy, Symptoms
Colon Cancer Awareness Month always leads me to reflecting upon my own family’s experiences with colon cancer. I’ve mentioned before that FAP has ran in my family for many generations and we have had countless numbers of members die from colon cancer....
by benforred | Feb 8, 2015 | Advocacy, FAP Information, Health, Mental Health, Research, Symptoms
We are all faced with at least one event, one experience that shapes us, changes us, and forever transforms us. It etches out a path, trailed with the obstacles and joys that may stem from our transformative experience. We’re drawn to this path like a moth to a...
by benforred | Oct 2, 2014 | FAP Information, Health, Medical Providers, Pain, Symptoms
Anyone with Familial Polyposis is already a rare individual. National Registries show FAP occurring in 2.29-3.2 per 100,000 individuals. And if you’re anything like me, this rarity is only the beginning of rare health issues. My GI doctor has for a long...
