by benforred | Jun 16, 2021 | Birthday, Cancer, Colon Cancer, Guest Post, Health, Ostomy
Carleton Myers turns 95 this June. He has Familial Adenomatous Polyposis and has had an ostomy since about 1948. He has seen a lot in his years and a lot of changes in the management of this rare disease and ostomies. Carleton’s mother likely had FAP as she...
by benforred | Oct 13, 2020 | Food, Guest Post, Medical Procedures
This is a Guest Post with Jeni LeeAnn I grew up knowing I had a 50/50 chance of having Familial Adenomatous Polyposis (FAP). My dad found out he had FAP just before I was born. His mother had FAP and all she knew growing up was that there was some family...
by benforred | Jun 30, 2020 | FAP Information, Guest Post
Desmoid Tumors, or aggressive fibromatosis, are another rare disease that is common among those with Familial Adenomatous Polyposis (FAP). According to NORD, up to 32% of those with FAP will develop a desmoid tumor due to a mutation on the APC gene, where the FAP...
by benforred | May 29, 2020 | Guest Post, Health, Pain, Physical Therapy
I had my first abdominal surgeries were in grade school from 1995-1996 and endured severe back pain particularly during this time. By the time I was in high school, I started noticing increased back issues as I was unable to sit up from a forward bend position. My...
by benforred | May 15, 2020 | Activity, Guest Post
This is a Guest Post by Kevin Myers When I was diagnosed at age 13 at the end of 1970 with Familial Adenomatous Polyposis (FAP) and followed with my total proctocolectomy surgery just one week after my 14th birthday in July 1971, I felt that much of my physically...
by benforred | May 1, 2020 | Guest Post, Product
The CareClinic App Team contacted me about sharing information about their app to help manage general health and medical conditions. I will let their guest post delve deeper into the app but I wanted to share my thoughts on the app first. Disclaimer: There are several...