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My Experience with Our Condition
Hi, I’m Ryan. I just turned 9 years old. I was diagnosed with FAP in November 2024, when I was only 7 years old.
My mom, Rebecca, carries the FAP gene through my grandpa’s side of the family. When I was diagnosed, I was incredibly scared and nervous. My mom, doing what she does best, went straight to Google looking for kid-friendly ways to help explain FAP to me.
That’s when she found one of my biggest resources—and one of the most important people in my journey—Jenny, with Life’s a Polyp Foundation. My mom bought Jenny’s book, and it became a huge source of comfort and strength for me through this challenging diagnosis. It helped me understand what was happening and reminded me that I wasn’t alone.
So far, I’ve had lots of blood tests, met with more doctors than I can count, and have had 3 scopes. At my last scope, they only found 1 very tiny polyp, which was really encouraging. Right now, we are waiting for the pathology results.
My story is still ongoing, and I want to keep sharing updates as I can, because I want other kids like me to know they are not alone—just like Jenny helped me realize I wasn’t alone either.
About Me