Jenny and her story and advocacy efforts have been featured in collaborative books, magazines, online articles, and podcasts.
Collaborative Books:
Magazines:
- Ostomy Canada Society – Summer 2025 Edition
- Ostomy Canada Society – Fall 2024 Edition
- Elephants and Tea
News:
Guest Posts and Interviews:
- Safe Repair Project
- The Chronic Truth Podcast
- Rareatives
- Elephants and Tea
- National Organization for Rare Disorders
- Global Genes
- Courage to Shine
- Patient Worthy
- PatientWing
- Navigating the Storms
- Imagine We Publishers
- Rare Revolution Magazine
- Medical Herstory
- Patients Rising
- #Rareis…
- Imagine Life Therapy
- Travel Breathe Repeat
- Despite Pain
Contributions:
- Tye Pod Panel 1
- Global Genes Guide to Medical Gaslighting
- Global Genes Guide to Grief
- Global Genes Guide to Securing a State Proclamation for Rare Disease Awareness
- Horror Stories from the Ableist Society
- Covid-19 Vaccine Experiences from People with Chronic Conditions
- 16 Chronic Illness Bloggers Share Their Top Posts for 2020
- How to Survive the Holidays When Chronic Illness & Disability Cause Pain
- Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness
- The Great Life Report by ME/CVS Self-Help Guru
- 10 blog posts for helping you survive valentine’s day with a chronic illness
- Supporting People on Rare Disease Day
Podcasts:
- Chronitalk
- The Tye-Pod
- The Painful Truth Podcast
- Rare Connection
- One Condition
- Shining Brightly
- Two Mics One Joe Soochh
- AYA Cancer Unfiltered
- My Invisible Disease Podcast
- I Am Not My Pain with Melissa Adams
- 123 Momsquad with Jennifer Subjeck-Fedus
- Body Talk with Becks
- The Bearded Advocate
- Invisible Me
- The Rare Disorder Podcast
- PodcastDX
- Peer Med Podcast
- Because We Are Strong
- We Have Cancer Show
- With Love Alexa
- I Am Not My Pain Podcast with Melissa Adams
- The Challenges Facing a Nontraditional Parent with Chronic Illness Part 2
- The Challenges Facing a Nontraditional Parent with Chronic Illness Part 1
- Perseverance when Living with Chronic Conditions
- The Handicapable Podcast
- Learning Self-Advocacy with Rare Disease
- Grief and Reimagining Advocacy Goals
- Walking a Fine Line as a Squeaky Wheel: Communicating With Doctors
- How Therapies Treated My Musculoskeletal Injuries from Rare Disease
- My Approach to Taking Medications
- Tips for How to Set Boundaries With Others
- Calling Out with Grace
- Grappling With the Possibility of Having Another Rare Disease
- What to Know About Support Groups
- Disclosure in the Workplace
- Walking a Fine Line as a Squeaky Wheel: Communicating With Doctors
- How I Gradually Changed My Relationship With Medical PTSD
- Getting Emotions Out: Why It Matters and How to Do It
- How Persistence and Medical Partnership Impacts Diagnosis
- Role Reversal and the Patient-Caregiver Relationship
- Making My Home Disability Friendly Now Rather Than Later
- Developing Elevator Pitches for Rare Disease Advocacy
- Making My Home Disability Friendly Now Rather Than Later
- Becoming a Do-Not-Resuscitate Patient
- Questions I Ask Myself on My Healing Journey
- Shifting the Focus of Goal Setting
- Getting Back Into Advocacy After Burn Out
- Which Specialist Needs to Know Your Symptoms? All of Them.
- Creating Business Cards for Rare Disease Advocacy
- Lessons Learned in Navigating Medical Debt
- A Guide to Awareness Proclamations: What Are They and Why Do They Matter?
- I’ve Learned Self-care. What About Self-love?
- How Persistence and Medical Partnership Impacts Diagnosis
- Rare Disease Advocacy Is a Constant, Never-ending Opportunity
- When We Medically Gaslight Ourselves
- Fighting Misconceptions Can Save Lives: Rare Disease Surveillance
- The Power of the Words We Tell Ourselves
- Setting Boundaries: What Self-care Looks Like
- Grieving Loss in the Rare Disease Community
- When We Are Eager to Undergo Medical Tests
Explore Awareness Avenues
Life’s a Polyp with Zeke and Katie
Jenny’s Children’s Book about FAP Life’s a Polyp with Zeke and Katie helps children better understand FAP, what to expect with FAP, and ways to cope with it all in a fun and age-appropriate way
Life’s a Polyp Shop features a variety of designs showcasing FAP, rare disease, and chronic illness awareness
A Daughter’s Love Podcast features Jenny and her cousin Amy as they delve into family stories about FAP, cancer, Alzheimer’s and the love and grief that makes up caregiving. Jenny and Amy are cousins and lost their mothers 3 weeks apart, cementing them in a special connection of daughterly love.
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