Get Involved
Fight for Funding 5k
Volunteer to help make our annual fun run a success. We need course officials, time takers, volunteers to run the registration and visitor booths, people to work at the water stations, volunteers to help with kids’ face painting and false tattoos, parking lot traffic direction and more.
Rock for Rare
Each year, our Rock for Rare music festival features a dozen bands from around the US, food vendors, community organizations, and public education tents where attendees can get out of the sun, grab a cold drink, and learn from our community members about life with our condition.
To make Rock for Rare a continuing success, we need help in all of the areas above! Consider volunteering to support our community, enjoy time in the outdoors with live music, and raise funds for research!
Annual Research Gala & Casino Night!
Our biggest fundraiser of the year cannot be possible without your support! The Annual Research Gala and Casino Night is an opportunity we take to thank our supporters, recognize the researchers who have been supported by our community’s generosity, and have fun with family, friends, and supporters in one unforgettable evening.
If you’ve ever attended, you know that we always need help taking tickets, working the coat room, serving drinks, and helping direct parking traffic. We’re also looking for anyone with experience as a dealer in a blackjack or Texas Hold’em game, bingo callers, and volunteers to run the silent auction.
