by benforred | Feb 19, 2016 | Advocacy, Medical Providers, Symptoms
Last year my pediatric GI doctor of over 20 years decided to push me out of the nest and transition me to an adult GI doctor. During my hospitalization last year I faired well with the change in doctors as my new doctor and I started the song and dance of a newly...
by benforred | Sep 30, 2015 | Advocacy, Caregivers, Death, Health
One of the most important things we can do for ourselves is to discover how we want to live. However, this understanding not only includes how we walk this earth but also how we leave this earth. There is great honor in being privileged to walk the journey of life...
by benforred | Feb 8, 2015 | Advocacy, FAP Information, Health, Mental Health, Research, Symptoms
We are all faced with at least one event, one experience that shapes us, changes us, and forever transforms us. It etches out a path, trailed with the obstacles and joys that may stem from our transformative experience. We’re drawn to this path like a moth to a...
by benforred | Jul 29, 2014 | Advocacy, Health, Mental Health, Ostomy, PTSD
I’m taking a moment to shamefully and not so shamefully tell you about a book you absolutely must read. Although this book isn’t directly related to FAP, it’s written by a well known character among the social media ostomy and IBD circles and by...
by benforred | Oct 7, 2012 | Advocacy, Ostomy, Support
Today is World Ostomy Day to raise awareness of ostomies, bladder and bowel disorders or dysfunction. So happy World Ostomy Day! There are so many new groups that have come together since I was a child. When I was 9, I knew 2 others with ostomies. My parents...
by benforred | Sep 10, 2012 | Advocacy, Discrimination
When your life revolves bathroom habits and a toilet, obstacles to the use of a restroom is not only infuriating but also anxiety provoking for so many of us in the toilet bowl of life. Ally’s Law, the Restroom Access Act, is well known to those in our circles....
